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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Else Considering Cutting Dosage And Hoarding Or Weaning Off Meds In Case AHCA Passes? What's Your Plan?

A myRAteam Member asked a question 💭
Pepperell, MA

If AHCA passes, Medicare will be gutted. I can no longer work except sporadically, so I depend on it exclusively for RA medications, migraine preventives and rescue injections, and all the med-related testing that goes along with RA. I am worried that if I don't start phasing back sooner rather than later I will suffer when my insurance disappears. I already only use migraine injections when I absolutely have to (level 10 pain), as I only get 8/month. On occasions when I have had to pay for one… read more

June 24, 2017
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A myRAteam Member

Don't suffer today because of something that may/may not happen in the future.

June 24, 2017
A myRAteam Member

Some politicians wanted to defund Medicare. That’s why I voted against it. After paying for Medicare for over 50 years I feel like they owe me.

December 8, 2022
A myRAteam Member

Yes, but Medicaid IS my insurance, and the only coverage I have. But it's good to hear about others' experience with different RA meds; I am still early into the (slow-in-coming) diagnosis, so still on Methotrexate. That will likely change later this summer, as MTX seems ineffective.

June 27, 2017
A myRAteam Member

I have hope that my Rheumy would vote for me to be able to afford this Xeljanz I'm on or whatever other biologic I'll be on, and I could never afford on my own. To get my insurance to let me have another year of it, My Rheumy vouched for me and said that my health has improved at least 20% more, and they approved it. I know that if we have to pay out of our own pocket, I won't be on biologics, but on Prednisone and others because we can't have huge doses of Prednisone for long periods. Other non-biolgic meds. just never did much for me or affected my liver.

June 27, 2017
A myRAteam Member

So far, all the meds I'm on are covered by Medicare or SilverScript (part D)

June 25, 2017

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