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Has Anyone Experienced Swollen Lymph Nodes?

A myRAteam Member asked a question 💭
Schererville, IN

I was diagnosed with RA about 12 years ago and have been taking Humira the majority of the time. Over the past six months I've been having more issues with swelling, joint pain, and fatigue. It seems like my medication isn't working like it used to. My doctor wants me get a CT scan because my lymph nodes are swollen in the armpit and groin area. I'm just wondering if others go through this?

January 11, 2016 (edited)
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A myRAteam Member

First I would say that if in the last year you have been experiencing more flare ups, that is a good indicator that Humira isn't working for you any more. To be honest I haven't heard much about the side effects from it however I do know it can effect your nervous system. The doctor tried me on it and by the second dose, I lost feeling in my arms and from my knees down. It took three months to get feeling back. I hope everything goes well for you, I will keep you in my prayers.

January 12, 2016
A myRAteam Member

Yes I had a CT scan July 2015, which discovered I had too many Lymph nodes and they were enlargened. These Lymph nodes sit by the bowel. Then 2 specialists were convinced I had "Lymphoma". Not good.
But after 2 procedures in hospital, I got the "All Clear"
Of course I didn't know these lymph nodes were swollen. I was sent for a CT as I became very unwell after a major surgery.(unrelated to RA).And the Doctors were perplexed at what was going on for me..The surgeons do feel my lymph node problem was linked to my RA. I am grateful I had the CT scan otherwise none of this would have been picked up.

Good luck

January 14, 2016
A myRAteam Member

Any of the biologics can suddenly start not working as well. Thankfully there are quite a few of them out there now. I find the anti-TNF ones to work for me but you may have luck with the others too. You never know until you try

January 13, 2016 (edited)
A myRAteam Member

Hey Charlotte. Apologies for the late reply...I'm so happy your results were benign, thats wonderful news.. I hope you have been keeping well.

February 23, 2016
A myRAteam Member

Yes, it's painful. Under my arms, sides of my throat/neck, and groin area too. My feet are numb right now and so is a spot in my upper back. UGH!

January 13, 2016

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