SuElf,

Some doctors will listen to your thoughts concerning your healthcare. Others will not listen and become upset when you mention what you have read about it. I always try to mention reputable websites such as JAMA, PubMed, NIH, and such. It's about how you feel. Do you feel you are getting what you need from your doctor? I've had 4 Rheumatologists; some were awful and wouldn't listen, so I moved on. Being your advocate is a must, as Shegab said, you know your own body.

I am my own advocate... I do read a lot and hear to my specialist... but at the end I am the one that feels what is happening to me. What works and feels better. When it comes to specific medical maters, I always take opinions of specialists... My biological shot was a breakthrough in my case and the recommendation came from a my rheumatologist. So sometimes it is necessary to consider their input.
It's a bit confusing sometimes... how cool they react to your complaints.
Wishing you nothing but the best and praying they would find a cure very soon.🤞🙏🏽

If you don't advocate for yourself, no one will! It's all been said in previous comments and suggestions are sound. The most important thing you can do for yourself is to find a specialist who listens and is willing to discuss your concerns.

I love my rheumatologist and I trust him so much. But as I learn here and doing other research, I do question him sometimes, but he talks through it with me. Defined if you don't feel like your being heard you can try another physician. Always be your own advocate. If something doesn't feel right question it. If there's one thing I've learned you don't have to go with the flow. You are incharge of your body.