Connect with others who understand.

Sign up Log in
Resources
About myRAteam
Powered By
Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Misdiagnosed?

A myRAteam Member asked a question 💭
Milford Center, OH

Has anyone been misdiagnosed with RA? I was diagnosed 10 years ago (mri of my wrists) and was on methotrexate 10 yrs. I never had a flare up and thought the drug must be doing wonders. I recently moved and a new rheumatologist said he thinks i was misdiagnosed - I have no markers for RA. I am off of methotrexate now 3 weeks and so far so good. How often does this happen that people are wrongly misdiagnosed with RA?

September 19, 2023
View reactions
A myRAteam Member

Awful that it took that long to diagnose you correctly. I’m very disappointed in doctors. I didn’t think I had RA but the blood tests show I do. It affected my big joints not small and I never got the swelling. I guess I’m lucky that way. I went for a second opinion and I was told the same. 😟

September 21, 2023
A myRAteam Member

Thank you. The information was quite helpful. I guess it jmakes we wonder why some rheumatologists don't routinely check for markers every few years as standard protocol. Either way, I'm happy to be feeling good and that's what counts.

September 22, 2023
A myRAteam Member

It's possible that your original doctor was correct.
There's a standard test that most doctors do, sediment rates etc., but there are other tests that can be done looking for rarer markers in the blood and urine.
My GP tested me for RA on a regular basis for 7 years because the knuckles in my hands were getting so large. His blood test results never showed the standard markers for RA. This year, I took myself to a very good rheumatologist who looked at the rarer markers for RA, found what he was looking for and gave me a definite diagnosis.
I wouldn't consider all those years on methotrexate a waste because that drug tamps down inflammation throughout the body and may have stopped the disease altogether.

September 22, 2023
A myRAteam Member

That is awful and I feel they do misdiagnose RA and you took methotrexate all those years for nothing I had a bad reaction to that medication. Sometimes I feel I am misdiagnosed because RA doesn’t run in my family on either side. My mother had multiple sclerosis. I always feel like do I have RA or am I misdiagnosed. I was diagnosed with hypothyroidism way before RA. Makes you think 🤔 I’m glad you found out and you feel good!

September 19, 2023

Related content

View All

How Long Did Everyone Wait For A Diagnosis? I’m Still Under “suspected RA”. Now Left With Pain Management Team! Feeling So Frustrated Now!

A myRAteam Member asked a question 💭
Glasgow, UK

I Am Haveing Problems With The Joints In My Fingers. 3 Of Them Are Now Permanently Bent. I Showed My Doc, She Said Not RA. Is She Wrong?

A myRAteam Member asked a question 💭
Cherry Hill Twp, NJ

Have You Ever Doubted Your Diagnosis?

A myRAteam Member asked a question 💭
Alberton, South Africa
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in