be careful...be guided by your Rheumatologist
I have been maintained on 1mgm of prednisone for a couple of YEARS.
Touch wood I have not had a flare up for years.
Kindest wishes
CynM

BBelle
You are so right. A rheumatologist worth his or her weight in gold will listen, recommend and listen again. I was with my rheumatologist from 1992 till she retired a few years ago and she would listen to even the craziest ‘cures’ I’d read about and try. She never belittled my attempts at these non-traditional suggestions as long as they did me no harm AND as long as I followed HER recommendations. She was Board Certified and one of the bet doctors I’ve ever had. Would that everyone on this site had one like her.

I just came off 2 months of Prednisone. I am still taking Hydroxy with np problems.
About a month ago my eyes started bothering me. My vision was blurry. And then my eyes felt like there was sand in them. Last August I had cataracts removed from both eyes. I read that Prednisone ‘could’ cause cataracts so last week I went to see my Opthamologist. Sure enough I have a cluster of cataracts on my right eye. He is going to laser it off.
He asked me if I had a dry mouth and eyes. And I do big time.
He said thats probably Sjogren’s Syndrome. I see my Rheum. June 1st. I am going to ask him to confirm it.

Ask your Mom about her eyes. Go back to her eye doctor. And get her checked again

The prednisone is a miracle drug with awful long lasting effects. I know some people dont have a choice. But I doubt I will take it again. It has really messed up my eyesight

Best of luck to both of you. 🌹🌹

I would definitely call rheumatologist and leave message with nurse for doctor. I was on 80 mg prednisone when first diagnosed in 2022. With plaquenil and later methotrexate pills. GI issues so switched to methotrexate injection. I remember I was tapering down prednisone every 2 days, I think. Even when decreased to 5 mg, GI issues continued. Now on 2.5 mg prednisone, plaquenil and Humira every 2 weeks. No methotrexate due to itching, fatigue, headaches side effects. Everyone responds differently to these medications so you really need to be your own advocate and hopefully find the meds that help you. The doctor may recommend decreasing prednisone 2 mg every 2 days or so and stop decreasing if you notice increased inflammation. But I’d ask rheumatologist. Good luck!

Prednisone is bad for so many things. I would stop. I will never take it again as it caused avn in my hips. Ask your pharmacist how to do a slow taper-off. It has shut down your adrenals so you need to very slowly get them going again.