@A myRAteam Member I really think the docs are guessing a lot more than we’ve ever realized and with these symptoms I don’t think they know. They try something until it sticks I guess. Not fun for us.

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A myRAtea...

Hi Kat9 - So sorry to hear that the methotrexate is not working for you (it's often the first med prescribed for RA but, unfortunately, it doesn't work for everyone). The adverse effects you're describing from taking the mtx are similar to my own when my first RA doctor put me on hydroxychloroquine - that stuff was just brutal on me and I stopped taking it. I was also sero-neg at the beginning when I was first diagnosed (about 5 years ago) but my CCP numbers were high and it was suggested at the time that I might have psoriatic or RA. I have since been diagnosed with RA (about 3 or 4 years ago) as I have also tested sero-positive for the RA marker. This type of guessing scenario is true for many folks on the RA roller coaster................so, try and hang tough - that's what all your warrior friends are here for. We all sympathize with your angst and frustration. Many hugs to you. 🥰

I'm like MYST62, but I'm back on Enbrel. I couldn't tolerate methotrexate. Is that helping or making you feel bad? I feel I can't do infusions either. Too much for my body all at once. I'm glad we have options, but it can be frustrating when they don't work. RA is such an unpredictable disease. Keep on trying to find a med, something may work! Btw you can edit posts. Click on the the down arrow in the upper right hand corner of a post. It's there.

Correction to the above: I did not feel bad and I thought that was part of RA.

@A myRAteam Member the methotrexate is helping my hands which is the only thing that ever bothered me. I felt 💯 everywhere else. But now the rest of me doesn’t feel as good. He’s not sure if it’s RA or inflammatory OA and they are treated differently. I’m not sure it’s RA either since I felt completely fine outside of my hands. Is that normal? I’m glad you found a med that is helping you!! It’s not sn easy road to that. Hope it continues to be exactly what you need.

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A myRAtea...