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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Actemra?

A myRAteam Member asked a question 💭
Walla Walla, WA

Rheumy is wanting to start this medication as Humira has now stopped working after 2 years. Of course it’s scary starting a new med. I’m waiting for insurance to approve.

October 7, 2024
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A myRAteam Member

Starting a new medication like Actemra (tocilizumab) can indeed be daunting, especially after another treatment like Humira has stopped working. Here are some key points about Actemra based on my knowledge base:

- Approval and Use: Actemra is approved by the FDA to treat adults with moderately to severely active rheumatoid Show Full Answer

Starting a new medication like Actemra (tocilizumab) can indeed be daunting, especially after another treatment like Humira has stopped working. Here are some key points about Actemra based on my knowledge base:

- Approval and Use: Actemra is approved by the FDA to treat adults with moderately to severely active rheumatoid arthritis who have had an inadequate response to one or more DMARDs (disease-modifying anti-rheumatic drugs).
- Administration: It can be administered as a subcutaneous injection (under the skin) or an intravenous infusion (into a vein).
- Mechanism: Actemra is a biologic drug that works by binding to and interfering with the activity of immune cells involved in inflammatory autoimmune attacks.
- Effectiveness: It may take several weeks to start working.
- Current Shortage: There is an ongoing shortage of Actemra, which might affect availability. Patients are advised to discuss alternative options with their rheumatologist if they face difficulties in obtaining the medication.

It's important to stay in close contact with your rheumatologist and insurance provider to ensure a smooth transition to this new treatment.

October 7, 2024
A myRAteam Member

Hi Dawnmichelle, I took Actemra two different times. I had side effects that were too great for my body so I stopped taking it. I take several other medicines and it is possible that the medicines could have interacted with one another. I'm not sure. I would want you to read up on this medication and talk with your R/A specialist about it. There are others on this site that have taken Actemra for a long time successfully. I was not successful. Hope you are doing well and also hope you will find a good medication for you.

October 7, 2024
A myRAteam Member

Hi! Of course every medication works differently for different bodies, so take this advice with a grain of salt. I was on Actemra for 3 months. I actually felt like I was either not on medication to treat RA, or that it made the disease worse. But that is only my personal experience. Orencia has worked the best for me. It hasn't caused side effects and it has allowed me to function properly again. New meds are scary! Good luck my friend! 🙂

October 7, 2024
A myRAteam Member

Hi Beverlyreese, thank you:-) I’m sorry it didn’t work good for you, I hope you were able to find a med to help? I did talk to my rheumatologist last week I had an appt and we discussed actemra. Rheumy felt that actemra was the best choice after Humira failing to try. I’m just worried about starting a new med.

October 7, 2024
A myRAteam Member

Hi my friend!! He did mention orencia if actemra doesn’t work, so I am so happy for you that orencia is working for you:-) I just hope Insurance approves so, I can start it soon. I feel awful and I hope these nodules go away.

October 7, 2024
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