Connect with others who understand.

Sign up Log in
Resources
About myRAteam
Powered By
Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Was Just Diagnosed With Pulmonary Fibrosis From RA Any One Else Here With This, Actually Scared The Data Says 1 In 10

A myRAteam Member asked a question 💭
Tucson, AZ
September 24, 2024
View reactions
A myRAteam Member

I was admitted June 24 with bilateral pneumonia and hypoxia. I was in hospital on oxygen for 8 days. CT scan chest looked massively abnormal so Pulmonologist was consulted. Seems that besides infection they saw interstitial lung disease. I also had severe Covid November 2020, and was on Methotraxate for two years, which can also cause ILD. So hard stop on Methotrexate per pulmonologist ( and I’m glad, I don’t think it helped much or at all). 4-6 months after discharge I will have high resolution CT scan and pulmonary function tests. Lungs need to completely heal from infection before they can have final diagnosis. Mine could be from severe Covid , Methotraxate or RA itself.or combination.
I was mortified when I was told that. Doc rolled in a computer into my room to show me images and it was disturbing to see your own lungs look so abnormal, but I needed to see it.
So soon I will have an answer. I asked Pulmonologist if he can keep me going as I have eleven year old son and he needs me. Pulmonologist said that he can, but to show up for appointments.
Yes I’m petrified. I try to stay positive, and plan to spend more time with my family and all the plans for travel to Europe , make them a reality.

September 24, 2024
COVID-19 and Rheumatoid Arthritis (RA) Essential Updates Read more >
A myRAteam Member

I’m so sorry, I truly understand. This really sucks

September 24, 2024
A myRAteam Member

Thank you, I worked in a Genetic lab until I retired. We primarily studied TGFB1,2, and 3
Never thought it would happen to me. I have always been really active.

September 24, 2024
A myRAteam Member

It's understandable to feel scared after such a diagnosis. Pulmonary fibrosis is a serious condition that can occur as a complication of rheumatoid arthritis (RA). Here are some key points from my knowledge base:

- Prevalence: Pulmonary fibrosis is a common and serious comorbidity of RA. Research indicates that out of Show Full Answer

It's understandable to feel scared after such a diagnosis. Pulmonary fibrosis is a serious condition that can occur as a complication of rheumatoid arthritis (RA). Here are some key points from my knowledge base:

- Prevalence: Pulmonary fibrosis is a common and serious comorbidity of RA. Research indicates that out of 5,534 RA patients, 178 (3.2 percent) developed interstitial lung disease (ILD), which includes pulmonary fibrosis.
- Genetic Factors: The presence of the MUC5B genetic variant significantly increases the risk of developing ILD in RA patients. Those with the variant have a 14.5 percent lifetime risk compared to 5 percent in those without it.

It's important to stay in close contact with your healthcare provider to manage and monitor your condition.

September 24, 2024

Related content

View All

RA Causing Lung Disease

A myRAteam Member asked a question 💭
Hattiesburg, MS

Has Anyone Used Methotrextate Injections And How Was Your Outcome?

A myRAteam Member asked a question 💭
Columbus, AR

Good Days

A myRAteam Member asked a question 💭
Lake Elmo, MN
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in