How Do Your Significant Others Deal With Your RA?
Today I went to the PCP and it left me.feeling a bit un easy. I have lived with RA for coming up on 20 years. I know every day is different and sometimes every moment is different. However the pcp that I share with my husband let me know that she had talked with him about how RA was affecting him. My very first response was to get defensive. I went straight into" I didnt ask for this or do anything to deserve this mode..then I realized that my feelings were very hurt. I understand it's tough⦠read more
I feel sorry for all of you!! I'm so glad I'm Not married anymore. I've been single for 26 yrs & have had RA 22 yrs.
If I had to deal with a husband that didn't understand or expect me to keep doing house chores when I wasn't capable or having a bad day, I would file for Divorce!! We have enough going on with our disease without having all that extra stress from a significant other. I hope you all find peace & healing! π
I understand my husband also works too. We have been married 40 yrs. You have to stick up for yourself, if you don't tell him you need help or are to sore he doesn't know. He thinks you're are ok you have to ask for help. I have never ever liked asking for help but I my have learned that I have too for my health and peace of mind. I tend to get mad at him until I realize he can't read my mind. I have to verbally tell him.
It is bad enough to have a disease that affects so many parts of our bodies, and we never know what to expect from day to day many times, but then to have those who are suppose to love us say that we are "making it up' , drama queens, etc. Just hurtful. I would probably go off the rails if my husband said these things to my face. If you don't have RA how can you judge???? I am so sorry for all you who have posted here and are dealing with this. Hang in there and know that we are all here for one another.
Glad I'm not alone, but I am so thankful we have this place to lean on each other..π
I not only have RA but also lupus, pulmonary hypertension and left bundle branch block to name the most serious diagnosis.
I'm currently going through heart tests to try to figure out why my blood pressure keeps dropping so low that I feel weak, nauseated, chest pressure , fast heartbeat to point it feels like I'm going to pass out. I thought it was the progression of pulmonary hypertension but so far results haven't shown cause.
Meanwhile my husband still expects me to do all the things I've always done with next to no help from him. I'm outside busting my behind to mow an acre of land bc somebody has to do it and we're not made of money. He helped for less than an hour one day and gave up. I put in at least 12 hours over a few days. If I don't keep at it it'll never get done, it'll grow back before I even reach the end not to mention trimming around fence line. He even went for a drive into town while I was mowing them after returning home decided he would "clean" above ground pool....so he gets to cool off in water, listen to music and drink beer while I'm working my butt off. Yes I'm mad !! I need help ! Now the weather has returned to brutal heat and humidity and Saharan dust so I can't finish ! He seems to think that after work at his job he doesn't have to help at home... even wanted me to put his truck registration sticker on and air in tires...not this time I say . figure it out yourself !! Wonders why I'm so mad ? Seriously ??!
Yes he'll drive me to my out if town rheumatologist but sits in the outside waiting area. When I come out he doesn't even ask how it went.
So does my illness affect him ? I'm sure it does but his behavior hasn't changed really since before all my health challenges. I'm sorry BUT damn , be human !!
I'm trying to not die ! I'm not young but not old either...but too old ,63, for this crap !
Sorry for the rant but you have no idea all the things I've had to deal with over the past few weeks ..while being barely functional.
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