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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have A Question For Everyone. I’m Experiencing Alopecia!! Large Bald Spots On My Scalp! Anyone Else? Due To Autoimmune?

A myRAteam Member asked a question 💭
Birmingham, AL
July 18, 2024
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A myRAteam Member

If you are on Methotrexate be sure your doctor prescribes Folic Acid with it to prevent the hair loss, as well as the mouth sores.

July 19, 2024
A myRAteam Member

Thank you all for your responses! That’s why I love this group!
I’m not taking methotrexate, did for awhile ( I think I’ve taken some of everything!) Right now I’m on Rinvoq & Plaquenil - and one other one that I can’t remember. I also get Prolia shots every 6 mos & I do keep Zpaks of steroids just in case of bad flares. I do have osteoarthritis & lupus. Now, I’ve been diagnosed w/stage 3 kidney disease. Years of having RA & taking all of the meds over the years have caused internal damage. I was told all of this at initial diagnosis - that over time, these things could happen. But, wasn’t expecting alopecia! According to my dermatologist, mine is an autoimmune situation. So, welcome to the world of RA!
So, that’s why I trust the Lord completely with my life, take one day at a time
& praise Him for each day that I can get up!
Love you all!
Rise

July 18, 2024
A myRAteam Member

Thank you!! I’m taking some kind of stuff from my dermatologist - been 6 mos now & it’s only getting worse. I’ll go back as soon as I can & see what he says. As w/everything else, this is an auto immune situation. I guess a wig is my next option.
Thanks for your reply. You have a good day! 😘

July 18, 2024
A myRAteam Member

Good morning Rise ☀️ I’m sorry to hear that you are having to deal with this 🥲 I’ve had hair thinning issues. Started taking biotin quite a while ago. It’s really helped me. Don’t know if biotin would help with this though 🤔 I’m sure you will talk to your doctor about it. Please keep us updated about the doctors suggestions. Hope today is kind to you 🤗

July 18, 2024
A myRAteam Member

Good morning Rise, I'm sorry this is happening to you. Are you taking methotrexate or leflunomide? These medications can cause hair loss. Do you happen to have Lupus?

July 18, 2024

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