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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Simponi Aria

A myRAteam Member asked a question 💭
Pittsburgh, PA

I’m beginning infusions next week with Simponi. Has anyone tried this drug and did you have any side effects?

September 24, 2023
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A myRAteam Member

I’m also starting new infusions in November with something called RITUXIMAB ... & don't mind admitting, I'm a tad worried. Some of these immune suppressants Medicines can be quite aggressive when 1st being introduced to the body & usually take 4 months to get established + start working their magic. I've tried several injectable treatments over the last 10 years, Starting on Methotrexate, then onto various Biological injections. I have been told to stop taking my current fortnightly injections AMGEVITA + I'm now being moved onto 6 monthly Intravenous Infusions of RITUXIMAB Starting with 2 infusions starting 9th & then 22nd of November. Fingers crossed we both get positive results & hope our side effects are minimal. We are all unique though & our bodies work differently. So even if others do share their experiences with you, Please bare in mind it could be totally different for you & me. I'm feeling a tad nervous, I'm also relieved & happy about not needing to inject myself again. Sending out a high 5's & smiles to everyone using the site & wishing you all a good day :)

September 25, 2023
A myRAteam Member

ReDeeLacey I'm on remicade infusions. It is NOT working for me at all. Sitting here today the pain is so bad I've got the shakes, sick on my stomach, cold chills and feel feverish. I feeling this often. I was hoping this would be the one after being told that the infusions would help me. I'm down to my last drug, Rituxan, and I'm really afraid of it! I wish you all the best!

September 29, 2023
A myRAteam Member

I get two Retuximab infusions every six months. I started them with my hemotologist for my itp but now my rhumatologist uses the infusions for my RA. I also take hydroxychloroquine daily and methotrexate 2-2.5 mg every Friday. The only side effect I have from Retuximab is the prep of steroid, Benadryl, and Tylenol...I sleep through the entire 3 hour infusion.

September 26, 2023

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