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Hair Loss After Taking Lafluidomide For A Year. Regrowth Is Very Different Than It Used To Be. Any One Have This Problem?

A myRAteam Member asked a question 💭
Fort Leavenworth, KS

I lost my hair on my head, arms, legs, everywhere. Since the hair grew back it is curley, dry, and unmanageable. Any suggestions how to handle it?

August 7, 2023
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A myRAteam Member

I started using shampoo and conditioner from a company called Humby. It's a bar soap but it works amazing on your hair. Especially if your older and your hair gets more frizzy, and coarse or like cotton candy looking. After the 3rd time I used it my hair is almost back to normal. I never thought I would be so lucky. It comes in different scents the blueberry is one of my favorite. If you end up trying it let me know how it's working for you. Hope it helps.

August 10, 2023
A myRAteam Member

Good to know, I will check into that med.

August 7, 2023
A myRAteam Member

I have always had very thick,straight hair. I lost so much that I had bald spots. My rheumatologist didn't want to change it, so I just stopped taking it. Now I'm taking Rinvoq and hair has grown back. I also feel better.

August 7, 2023
A myRAteam Member

Is this the same as Arava? I started taking it in February, then had to stop it in May for a surgery. I haven’t restarted it yet. I lost a lot of hair after taking it for one month. I have super thick hair but for weeks had handfuls of it come out at every shampoo. Thinking of taking something else when I can start back.

August 7, 2023

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