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Does Anyone Have The Experience Of Having Rheumatologist Or GI Not Having Definitive Diagnosis Of Which Specific Autoimmune Disease?

A myRAteam Member asked a question 💭
Orange, CT

My Rheumatologist and G.I. have discussed RA and mixed connective tissue disease, but due to blood work inconsistencies are not able to diagnose definitively. I understand medicine is not like math. It's just frustrating.

June 18, 2023
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A myRAteam Member

I am not sure I understand the question as they both have very different symptoms but, I was told by my rheumatologist that I only have one immune system so of course there’s a connection. In fact I had my colon removed because of 30 years of ulcerative colitis and when I told him that, that was his reply. Also if you have one autoimmune disease you are more likely to get another than the general public. I also have a third being MS

June 18, 2023
A myRAteam Member

They have given me the diagnosis of undifferentiated mixed connective tissue disease, because it is systemic and I have symptoms and blood work that is not definite. Although they tell me they are sure mixed connective tissue/ RA /fibromyalgia. It is frustrating.

June 18, 2023
A myRAteam Member

Why would the Dr give you any medication if they don't know 🤔 exactly what to treat.

June 19, 2023
A myRAteam Member

I went to 3 specialists who were rheumatologist and they could not diagnose my RA. All they told me was I had a connective tissue disease, but didn't know which one!! I was frustrated and during that time, they had me on many medications that messed with my system.

June 19, 2023
A myRAteam Member

Yes and it was frustrating in the beginning phase of my diagnosis. After all these years, I still experience frustration, impatience with myself and anger when I can't move as quickly as I used to.

June 21, 2023

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