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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Here On Rituximab Infusions?

A myRAteam Member asked a question 💭
Denver, CO

Doc wants me to start this medication but I’m a bit concerned about the “fatal brain infection” listed under possible side effects… I have been on humira, inflectra, xeljanz, sulfasalizine all of which stopped working. Currently on methotrexate and plaquinel but doc wants to add another medication in as I’m still getting inflammation and flares. Thoughts on this medication if you’ve tried it?

April 19, 2023
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A myRAteam Member

It's awful when insurance companies dictate what we need or can have bc of costs. You can also try the maker of the drug. You may be able to get copay assistance. I did with Enbrel when I had commercial insurance for my prescriptions. Now, I'm with a Medicare subsidized insurance, so no more help with copays! Even though the price is the same. Smh

April 20, 2023 (edited)
A myRAteam Member

No the doc didn’t really say - just trying to find a medication that isn’t $1000 cause I have a high deductible plan and figured this one might work cause I’ve tried so many others. She tried to get me on Orencia but I was told it would cost $1475 for one dose with insurance (which is one week) so that was out of the question so then she suggested this medication which is cheaper and more covered by my insurance.

April 19, 2023
A myRAteam Member

Hi, I am starting Rituximab soon. Any suggestions or words of wisdom or moral support?

August 30, 2024
A myRAteam Member

I just started this. I failed with inflectra orencia and so on. Hope it goes well.

August 31, 2023
A myRAteam Member

I'm on methotrexate weekly injections and prednisolone my rhumy has booked me to have rituximab infusions I'm scared of having this the possible side affects frighten me anyone have any experience or advice please tbh I'm really scared

August 4, 2023

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Simponi Aria

A myRAteam Member asked a question 💭
Pittsburgh, PA

Hi, Does Anyone Have Feedback On Rituximab? I Might Have To Switch To It + Add Methotrexate. I Don’t Want To Do IV Or Switch. 😔Thx!

A myRAteam Member asked a question 💭
Hamilton, ON

Hey . Hope All Is Well Iv Ra And Starting On Rituxamab This Week Iv Been Through So My Biological Drugs Nothing Working Any Advice

A myRAteam Member asked a question 💭
Scotland, GA
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