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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Experience With Biologics? And/or Specifically With Orencia?

A myRAteam Member asked a question 💭
Asheville, NC

My RA is not controlled enough, so my rheumatologist wants me on this drug. It is a onthly infusion. I have doubts, so would appreciate anyone's experience. Thanks, Arida

October 29, 2019
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Answer Summary

Members shared their experiences with Orencia infusions for rheumatoid arthritis, with responses ranging from those who found it ineffective... Read more

Members shared their experiences with Orencia infusions for rheumatoid arthritis, with responses ranging from those who found it ineffective to several who reported it working well for years, either alone or combined with methotrexate. Many members emphasized that infusions are generally comfortable with attentive nursing staff providing support, snacks, and amenities like TV and blankets, and that minor side effects like headaches can be easily managed. A recurring theme was that everyone responds differently to biologics, with members encouraging the original poster to try Orencia while acknowledging it may take experimenting with multiple medications to find the right fit, and stressing the importance of managing stress and staying mobile despite the challenges of living with RA.

A myRAteam Member

I’ve had ups and downs. I’ve learned to work through because I have no other choice but to keep going. I think being around people who push me and know when enough is enough are my biggest assets. Stress makes me flare more than anything else. I did journaling to find out my triggers. I’ve had it for 18 years, so I’ve had so time to figure out things lol. It’s a rough disease, but not impossible. I think trying medications is the best option. I’ve seen a lot of reluctance due to side effects, but I say choose between mobility and vanity. Hair can grow back or wigs can due the trick. Nothing is perfect in this life but totally doable!

November 4, 2019
A myRAteam Member

I’ve been on several of the biologics. About 6. Some work well with other medications and some work best alone. The worst side effect I experienced was with humira. I liked orencia. Everyone has a different take and experience on each one as all of our RA is not alike or in the same stage. I say go for it! We are in a time of advanced medicine.

November 3, 2019
A myRAteam Member

I would definitely give it a try ! I’ve been on 7 different ones and it was Orencia that has helped the best ! But we do all react differently! Good luck and keep us informed! Hugs

November 3, 2019
A myRAteam Member

I'm on Medicare and Medicaid dual plan through UHC. It's funny how you have to try these medications in the order the insurance wants you too.

October 29, 2019
A myRAteam Member

My Rheumatologist wanted to put me on remicade prior to orencia that I am currently on. I didn't qualify for their patient assistance program due to being Medicare. Are you on Medicare?

October 29, 2019

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