@A myRAteam Member, that is what makes this site so helpful. Knowing we are not alone in our fight to continue enjoying life after diagnosis. 🤗

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A myRAtea...

i was born with it and pain is all ive ever known! Constant pain wether it be sharp pain when moving or a dull ache!

Achy and stiff like I have the flu and sometimes it feels like knives in my joints. No fun at all.

I find that my RA feels like I was in a sizable car accident. I've had a few car accidents with whiplashes in the past and often that same feeling is what I feel in the morning until my body gets warmed up. When my Ari is affecting my hands, they literally feel like I've broken my fingers. I feel so bad when my husband would like a back scratch or to hold my hand and I just can't do it. Also I remember when I first got diagnosed, I woke up one morning with such pain in my wrist that I thought for sure I had broken my wrist in the night. I just didn't know how that could be possible. I made an appointment and got in that same day on a cancellation to see my doctor. He could feel all the swelling in my joint and right away recommended a blood test which came back highly positive for RH factor.

Just the other week, my husband carried about 24 12-ft cedars in and out of our vehicle and planted them in our garden. For weeks he hasn't been able to go to work. He's a massage therapist, and it rendered his arms completely useless. He was in so much pain he could hardly sleep or lift a glass. I feel now, as I watch him wear my splints, that he finally gets it.

It's especially awesome, when my RA is acting up in both my hands and my feet my shoulders my elbows my wrists my hips my neck etc. I feel like I walk like a zombie. Getting downstairs with my feet flatly landing on each step without any rocking mobility, and the pain it takes on me to hold on to the railing, all makes me look ridiculously awkward. it's embarrassing when my husband is at the bottom of the stairs and sees me come down in the morning. There's nothing I can do to appear more dainty, it just is what it is.

I used to be on different meds including biologics, but I had to get off of everything because it was causing holes in my intestines and my colon which almost led me to having my colon removed. Now I'm trying to get by on limiting my eating, getting enough sleep etc, which has been really hard. I can often see it in my husband's eyes how disappointed he is that his life is going to be changed because of mine. We love doing things together. Traveling, staying with locals, using their bus systems, staying in remote villages, and now all of this has become so much more difficult. Not to mention it's almost impossible to get any kind of medical coverage for traveling when you have RA, asthma, and have had life threatening situations with My intestinal tract. I try to encourage him to find friends and get some of this stuff out of his system but it also saddens me because the brain still feels like it wants to do those things even though the body just doesn't cooperate.

I agree Tracy I get so frustrated can't do simple things reading everyone's posts helps this is first time av posted x