I loved remocade infusions. It wa sthe best - I didn’t even consider disability for myself. Then I had to go off. Then I built up antibodies. And then I became disabled. :(

Rhemicade helped me , but once I got on Simponi I am like as normal as normal can be! The trick with biologics is to get the drug that targets your TNF factors head on. It’s just like cancer research, the right cocktail makes a huge difference.

I had my first infusion yesterday. It went well. I felt a little dizzy afterwards but I got passed that. However, I was super tired this morning and had to call-in to let them know that I would be late for work.

I didn't experience the sickness or loss of hair, but for being a really powerful drug- it didn't work well for me.

It does take a minute to get in your system. I am not pain free by any means but am functional most of the time, long as I take the pain meds because I keep going into flares. I really don’t want to change meds because it seems to be holding the pulmonary fibrosis at bay. Breathing is a big deal and for me it does have the priority. There are some things that would work better,but because of the PF I can’t take them. They said I would live about 3.5 years and then thenPF would kill me. I a, presently just about halfway there. Only God knows for sure. The last six months have been very, very rough, but I am trying to push through. I would really like to take a vacation, not sure it will happen, but I am going to try.
Do what you can , when you can is my best advice. Try to focus on the positive. Treat each day like it is special.❤️❤️❤️🙏🙏🙏❤️❤️❤️