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Inflammation

A myRAteam Member asked a question 💭
Reno, NV

I had labs done recently and my sed rate jumped from a 54 to a 120 in 2 months. Has anyone else ever experienced that and if so what did the doctors say and how dis they handle it?

April 1, 2018
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Answer Summary

Members rallied around someone whose sed rate jumped dramatically from 54 to 120 in just two months, with many sharing similar experiences of... Read more

Members rallied around someone whose sed rate jumped dramatically from 54 to 120 in just two months, with many sharing similar experiences of sudden spikes in inflammatory markers that often signal a flare or indicate current medications are no longer working effectively. Several members described how their doctors responded by switching biologics like Humira to Actemra or Orencia, adding medications to their treatment regimen, or increasing prednisone doses, while others found relief through dietary changes such as going dairy-free, sugar-free, or adding anti-inflammatory foods like kale and broccoli. A recurring theme was the frustration of feeling dismissed by doctors when blood work doesn't match symptoms, the unpredictable nature of RA that seems to follow its own course regardless of treatment, and the importance of advocating persistently for answers and more aggressive care when inflammation levels surge.

A myRAteam Member

My sed rate was 105 and CRP. was 95 until recently and stayed fairly consistent for past two years. My Doc has me on three drugs and some days great and others, feel I am back where I started! Nothing has made my levels come down but last month they did and for no reason!! Yet I felt crap so think this RA just does its own thing regardless of what u take, eat, stress levels , weather etc! I have accepted it now but find it very hard to adapt my lifestyle. RA gets up in any way it can but it can't define you!!

May 13, 2018
A myRAteam Member

I started dairy and sugar free four months ago, practically vegetarian now too. Tremendous difference in pain and stiffness, yet Docs say no correlation between diet and RA!! CRP and ESR both normal, iron studies low so got to increase such foods. Realise no size fits all but anything is worth a try , to reduce misery of this diisease

October 1, 2018
A myRAteam Member

Not for nothing, did you corner your Doctor and ask why this happened the sudden jump. Your rheumotologist should have an idea. And recommend meds for that sudden jump.
Best of luck. Keeping good thoughts.

April 3, 2018
A myRAteam Member

@A myRAteam Member Sounds like the meds you are on are not effective. Talk to your rheumy about changing and/or adding something to the mix. Hopefully he/she will be able to come up with the right "cocktail" for you that gets you out of pain and able to function.

April 2, 2018
A myRAteam Member

Well... as you know sed rate is the amount of inflamation as indicated in your blood. So the fact that it was high already (normal is 10 or less) and now doubled yo are probably having a flare. The question is why. Maybe eating something you shouldn't, an unusual event , or your medications have failed. Hopefully your doctor will figure it out. Hope your not in too much pain.

April 1, 2018

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