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Is It Possible For Inflammation Markets To Be Down But Still Be In A Lot Of Pain And Horrible Fatigue?

A myRAteam Member asked a question 💭
Washington, DC

Started Cimzia a few months ago. My inflammation markers are normal now but my pain and fatigue are horrible. Should I still have weakness, chest pains and pain with stiffness?

December 20, 2016
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Answer Summary

Members validated the experience of suffering severe pain and fatigue despite normal inflammation markers, with many sharing that they too... Read more

Members validated the experience of suffering severe pain and fatigue despite normal inflammation markers, with many sharing that they too have seronegative RA where blood tests consistently come back negative even as their disease progresses with joint replacements and visible deformities. Several members emphasized the critical importance of seeing a doctor for chest pain, sharing personal stories of costochondritis (inflammation of the chest cartilage) that can be managed with rib injections, though some noted they still struggle with chronic chest pain. A recurring theme was that lab work and inflammation markers can be very misleading and don't tell the whole story, as RA symptoms like debilitating fatigue and pain can fluctuate dramatically with weather changes and barometric pressure regardless of what blood tests show.

A myRAteam Member

I have sero negative and felt like a fake eveb though I have terrible pain and fatigue , took me a long time to come to terms with accepting that although I was sero negative I still suffer RA .

December 27, 2016
A myRAteam Member

I also have seronegative RA, inflammation markers always normal but have all the pain and fatigue... blood work can be very misleading!

December 21, 2016
A myRAteam Member

Absolutely, these tests can only tell you so much. They're definitely not 100 accurate, that's why 35% of us have seronegative RD. Though I've had both hips replaced due to this disease and a wrist that's started to deform, my blood tests come back negative all the time. My Dr diagnosed me with an ultrasound.

December 21, 2016
A myRAteam Member

Went to the er with chest pains. Turned out to be an inflammation if the cart ledge in my chest. Called cistochoritis. I think you should always be checked when having chest pains.

December 28, 2016
A myRAteam Member

I have been on for over two years and it was wonderful. I am off now because I lost my insurance and I am back to feeling so much pain. I plan on doing Cimzia again as soon as the insurance kicks in. I don't remember any side effects. I highly recommend it.

December 10, 2018

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