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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Humira Problems

A myRAteam Member asked a question 💭
Worcestershire

Thankfully my rheumy has failed this drug, but I'm wondering if the side effects are now permanent
I started immediately with really severe headaches, my pain increased each time I took it and also feels different, like it's not only in my joints anymore it's in my tendons muscles and cartilage ( even my nose!!), I have soft bumps appear on my wrists and hard lumps on underside of joints, my throat is permanently swollen and the pain in the soles of my feet is awful and to top it off I have… read more

July 23, 2016
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Answer Summary

Members shared widely varied experiences with Humira for rheumatoid arthritis, with some reporting severe side effects like debilitating... Read more

Members shared widely varied experiences with Humira for rheumatoid arthritis, with some reporting severe side effects like debilitating headaches, increased pain throughout the body, fatigue, and swelling that felt worse than their RA itself, while others found it to be a lifesaver with minimal issues. Several members offered reassurance that symptoms typically clear within two to three weeks after stopping, and many encouraged exploring alternative biologics like Enbrel, Orencia, Actemra, or Rituxan, emphasizing that each drug targets different pathways and what fails for one person may work beautifully for another. A recurring theme was the exhausting trial-and-error nature of finding the right treatment, the fear of starting new medications after bad reactions, and the importance of listening to your body and advocating for a change when something isn't working.

A myRAteam Member

Humira gave me severe leg weakness and stiffness, But it works for multiple people. You sound like you are allergic to Humira. I have been on embrel and Orencia, they both worked well for years. Don;t be afraid.

July 28, 2016
A myRAteam Member

I have been on humira my whole time I’ve had RA. It’s been a lifesaver literally!! I almost died! All my joints locked up. I list 35 pounds in 2 months. I have headaches from time to time. I have lost a lot of hair. My feet were hurting so bad I couldn’t walk on them so a small ache is bearable. I have known others that tried a different biologic and it worked. Each one targets different areas of origin

December 16, 2022
A myRAteam Member

I believe you... the meds cause more damage in other places.. sometimes, DEADLY... i stopped and sought out DOCMJ... cbd oil, tinctures, topical ointments and RSO have worked wonders for me... holistic teas with EXTRA turmeric and cinnamon and regular exercise are the way to go.. I so over it thinking that doctor's way of STOPPING THE PROGRESSION OF WHAT "they say" IS INEVITABLE makes sense.. IT DOESNT!!! IT CAUSES more reason for you to keep seeing them... im trying to get back to the EARTH's medicines

November 14, 2023
A myRAteam Member

I had good luck with humira for 1.5
Years then I got a horrible blood infection and almost died I
Used retuxin after that but way to expensive and I didn't feel like it helped me.

July 26, 2016
A myRAteam Member

@A myRAteam Member

Some RA drugs can put you in a medically induced Lupus. I had that & sounds like a lot of similar symptoms. Ask your Rheumy & see what they say. I'm now on Rituxan infusions. It treats both RA & Lupus. Hope it helps, blessings to you!

July 25, 2016

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