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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Been On Rituxan Or Cimzia With Success And Were There Short And/or Long Term Side Effects?

A myRAteam Member asked a question 💭
Collinsville, TX

I've pretty much tried all meds over the last 30 years. Some helped awhile then stopped. Many nothing. I do not like the biologics but don't like always hurting and feeling bad either........Any help is appreciated

January 9, 2016
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A myRAteam Member

I have been taking Rituxan infusions every six months for the last 6 years. The biggest drawback for me was the inconvenience of the five hour infusions, which meant additional time off from work, as well as the compromised immunity concerns. I have also been taking Plaquenil during the same time period.

My current rheumatologist has suspended my Rituxan treatments until we are able to resolve a chronic sinusitis condition. She also doesn't feel that the Rituxan has been preventing further joint damage since recent x-rays showed advancements in joint erosion. I'm not sure if I will be continuing the Rituxan, or if she will be switching me to something else. Good luck to you, and I hope you find a treatment that will help diminish your pain and feeling unwell.

January 16, 2016 (edited)
A myRAteam Member

I have had RA for 50 years and when first diagnosed I was taking 17-20 aspirin a day. Ever since then, I have not had any drug that has worked for me. I believe this also made me sterile because I couldn't have any children. I am 55 now and wish I had children and grandchildren every day. I would like to feel normal, without pain for just 1 day. Good luck and best wishes.

January 12, 2016
A myRAteam Member

I'm in Rituxan, twice every six month, the very first infussions didn't help that much but as time went on this helped me with a very bad flareup I was.going through.

March 10, 2016 (edited)
A myRAteam Member

Hi Sonja,
I'm sorry not have responded sooner. I did not have any problems with the Rituxan infusions, but they also gave me Benadryl, some sort of GERD med -can't remember what, and Tylenol before starting each infusion. What kind of troubles have you had?

January 31, 2016 (edited)
A myRAteam Member

I was on Cimzia for about a year with no problems. I went back on Remicade because my RA factor was going up so it was not as effective for me as the Remicade.

January 11, 2016 (edited)

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