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Just Noticed Someone Here Had Kidney Stones Recently. I Get Them Frequently So I'm Curious If Anyone Else Gets Them A Lot Too?

A myRAteam Member asked a question πŸ’­
Boston, MA
December 3, 2015
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A myRAteam Member

I have had mine for years too, never had lithotripsy as they said insurance wouldn't cover it since its chronic, does it cover it? Yes.. We have a talent . Stone manufacturers ..lol glad you haven't passed anything for a while

December 11, 2015
A myRAteam Member

@A myRAteam Member - sounds exactly like my situation. This has been going on for years. I have a good relationship with my Urologist 😩 I actually go to see him every 6 months. I get an ultrasound - they do this right in his office and all my stones (both sides) are measured. When any of them get to a certain size or move to an area that could cause a blockage, I have a lithotripsy done; light anesthesia, in and out in 1/2 day. I haven't had to pass one in a while (knocking on wood now).
I am a stone manufacturer ☺️ We all have talents....this is mine (and yours Jennie!)

December 11, 2015
A myRAteam Member

I have chronic kidney stones,I am constantly forming them and passing them,,my CAT scan always shows tons and tons of stones in both kidneys..I have a couple problems that cause them , and they are not RA related.. I have a metabolic problem and my body takes calcium from my bones and dumps it in my kidneys, and then I have a physical defect of my kidneys and the tubules are dilated at the end, so the urine pools and forms stones..my recommendation is to drink lots and lots of water, and avoid excess salt..it's a real bummer ..so sorry you are dealing with this. I have calcium oxalate stones, so I need to avoid high oxalate foods, (the spice turmeric/curcumin is very high oxalate, some people take that in pill form or just in the powder form for pain, if you have calcium oxalate stones I would avoid that supplement..) but even with diet changes, and meds, I still form stones ..

December 10, 2015 (edited)
A myRAteam Member

A friend had some really bad ones not long ago. And shortly after I had some sevear kidney pain and then bladder and urethra pain I'm pretty sure it was a stone that luckily passed.
I had never had any issue like that before. Not sure if it was meds or bad luck.
I hope you get it straightened out.

December 7, 2015
A myRAteam Member

I've had kidney stones removed 3x in a short period. He wants to test my urine to find out what kind they are. I guess if they are a certain kind there is a drug that may help. It will tell him.h
However, I've been researching and I believe I'll be doing this frequently. I had gastric bypass awhile back and that's one of the reasons that they form. But, who knows. Several things cause them, but I don't remember if RA has anything to do with it. I'm alot of help. Just thought I'd put that out there because who knows what all this crazy disease does.

December 7, 2015

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